My brain is broken

The day following BlogHer, after a nice solid 12 hour sleep, I woke ready to take on the world/my swag.

Still processing what exactly I wanted to take away from BlogHer (and honestly, still am digesting the whole experience), I sat down at the computer ready to write.  Mid email from a neighbor I lost the ability to read.  Letters jumbled, words failed to make sense, I struggled to sound out everything, and my vision blurred.

I quickly realized these sensations as a migraine aura and popped a rescue pill.  I laid down in my quiet, dark room and waited while my right arm proceeding to go numb.  The feeling spread up my arm and then down my body.  For the next hour I lost my right side.  The feeling came and went and after 2 hours of nausea the pounding, excruciating pain crept up to my left temple.

I texted Mike, as best possible, considering. I called my doctor, knowing the double doses of prescription meds failed.  After a half hour of waiting, I called again.  Finally after an hour my doctor called and through sobs heard my symptoms.  I needed emergency room care since this migraine was unresponsive to my typical Rx approach, including an additional dose of Percocet.

Mike left work early, came home to find me in a mess of pain, and off we went to the ER.

Once there my high blood pressure relayed my extreme pain.  My slurred speech and inability to recall exactly the words I needed nodded to abnormal brain activity.  The struggle to move my right side as easily as the left checked off  one more item on a list.  There was concern I was having a stroke.

The emergency room doctor gave me doses of three intravenous medicines, one at a time.  Each one failed to kill the pain.  Only with a strong dose of narcotics did my pain finally subside.

Thankfully, my MRI came back clear with no stroke line.  My new diagnosis stands at a “complicated or complex migraine.”

Moving forward? My neurologist was honest saying he did not know the best way to treat me.  I can take prophylaxis (preventative meds) however currently the risk of potential side effects for me outweigh the benefits of taking them.  I will continue to use my rescue meds as necessary, but if they fail I have to follow up at the ER and get another MRI if I loose feeling for an extensive amount of time.  I can no longer take The Pill, as it increases your risk of stroke and my body already has a “learned behavior” similar to stroke.

For now I am increasing my magnesium, evening primrose oil, and vitamin D.  I will see my acupuncturist three times a week.  I will not take the synthetic hormones which were thought to regulate my levels and help, since they could harm me far worse.

So that’s where I’ve been — trying to fix my brain.  I also took a nice little side trip down to Florida to be with my family at the beach.

I owe this blog some other updates (ie: selling our house! my final thoughts on BlogHer! school year starts on again on Monday! my nieces are adorable!) and those will come soon.

Please continue to check back and thanks in advance for understanding why these posts are currently sporadic!

Oh and sorry for being a bummer, but YAY for not having a stroke!!

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  • http://www.JillianAmodio.com/ Jillian

    I feel your pain … literally. I too am a migraine sufferer. Thankfully after having a baby, my weekly migraines are no more like semi annual ones… weird right!

    Anyway my cousin works closely with a bunch of neurologists who treat these types of migraines I will see if they have any advice for you.

    Feel better love!

    • http://CrowningVictoria.com/ CrowndVic

      Oh, I would love to hear any information that they have to offer! I have heard the same about getting pregnant and having a baby, and how it can change your body chemistry. I’m hopeful that one day on the horizon we can look into that for an successful treatment option!

  • http://twitter.com/AmyMetherell Amy Metherell

    {{{{{{{{{{HUGS}}}}}}}}}}}} Have you tried eliminating processed foods from your diet? There are tons of chemicals in all processed foods that are known to cause migraines. Just an idea… I hope this gets better for you!!!!

  • http://twitter.com/kassarie Kassi M.

    Yeah, YAY for NO STROKE is right!!!! Yikes… this post just stressed ME out! I hope they can figure out a good plan of action for you ASAP friend!!!

  • http://gingerandgiant.wordpress.com/ Meaghan

    OMG Vicki that’s so scary!!! :( Migraine’s sound like the worst. I was listening to a podcast the other day (Stuff you should know) about How Migraines Work – and I was so shocked about how little the medical community knows about them. I imagine that would be so frustrating. I know you’re seeing an acupuncturist (which sounds pretty cool btw) but have you thought about a Naturopath? I generally love mine and have been pretty happy with melding the Eastern and Western medicine to try and get the best of both. Just a thought. But seriously No stroke is a BIG YEAH!!!! Sending positive brain thoughts to you!

    • http://CrowningVictoria.com CrowndVic

      While I’m not seeing a nutritionist, my acupuncturist has recommended some natural ways of treating these migraines. I did have an appointment to see a naturalist back in June, but then canceled the (non-insurance covered) appointment because I had seen improvements. And now we’re back here again. Looks like I’ll be rescheduling that appointment!

  • http://twitter.com/MommaExpat MommaExpat

    I can’t even imagine. I am so glad that you’re okay and stroke-free, the world is a better place with you in it. Congrats on all the good things and fingers crossed for all the bad things to get better.

    • http://CrowningVictoria.com/ CrowndVic

      Thanks, lady. Your kind words mean a lot to me! :)

  • http://twitter.com/SureDItsAllGood Duffy

    Suck it up. Who needs the right side of their body anyway?
    Aw, babe, so sorry. I can’t imagine. I know how bad a regular headache can be, and that is nothing compared to what you describe.
    Can’t wait to hear about selling the house! And your nieces ARE adorable. And I am sure you will have a class of little darlings who will do nothing but lower your stress level.

    • http://CrowningVictoria.com/ CrowndVic

      Ha! Right hand? OVERRATED!

      Thanks for the sweet words. Things can only look up, right?
      Right?! ;)